Listen Here to the latest podcast in our CDKL5 Deficiency Disorder International Series. CDKL5 Deficiency Disorder (CDD) is a rare neurodevelopmental disorder caused by mutations in the CDKL5 gene, resulting in seizures, intellectual disability, motor and social impairments. As members of rare disease communities know all too well, CDD is an international disorder, with the patient population scattered all over the world. In light of this, we have produced a series of CDKL5 podcasts, each in a different language, to highlight the voices of the international CDD community.
In this special Hindi episode, our host Disha speaks with Jainu Jogani who is the chairperson of CDKL5 Alliance and father of Reyna who has CDKL5 Deficiency Disorder.