Yesterday Ulysses Neuroscience Ltd. hosted its second annual event Rare Disease Day 2023. Rare Disease Day is a very important day that is held on the last day of February every year to help raise awareness for the over 7,000 rare diseases that impact people worldwide. At Ulysses Neuroscience we help to play our part on Rare Disease Day by raising awareness for rare diseases as well as informing people of the exciting research being conducted.
We hosted a variety of presentations from all stakeholders in the rare disease community. There were overviews on the current research on rare brain disorders from both academia and industry, as well as presentations from patients and patient communities to raise awareness of rare neurological diseases. The day also ended with a feedback and brainstorming activity to discuss how research in rare disorders can be moved forward.
Last Saturday we hosted the 2022 CDKL5 Family Day with the Irish CDKL5 community at Maynooth University. We heard from our CEO Massimiliano Bianchi, research assistant Ciara Connolly, Xavier Liogier from the LouLou Foundation and from Helen Allvin from Orion Pharma Ireland Ltd. A special thanks to Carolina De Pasquale for hosting the day.
Yesterday, members from the Ulysses Neuroscience team attended the 2022 Young Investigator Symposium held in the Trinity Biomedical Sciences Institute (TBSI) at Trinity College Dublin. Disha Disha, Ciara Connolly, Clare McGurk and Fabiana Traini all had the opportunity to present their work from Ulysses at the poster sessions, while Mary Glass was able to present her work on the IFN alpha model of depression during the 3-minute presentation session.
On Thursday the 4th of August, the entire Ulysses team was reunited at our facilities at Maynooth University. The team spent the day touring new facilities, sharing presentations and discussing exciting new projects. Overall this was an extremely productive Team Day and a great opportunity to have the whole team together.